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“since the jak 2 mutation has been identified, the research in this field has exploded,” says sirhan, noting that there are ongoing clinical trials for newer treatments. “the jak inhibitors made a huge difference for patients with symptoms and disease control, taking it from a rare disease with no treatments that made much of a difference, to lots of research to improve patient outcomes.”
in addition to the conventional treatment, pratt is also trying supplements, particularly a type of mushroom called turkey tail ( coriolus versicolor ) — her brother manages a vitamin and supplement store with many clients with cancer who use it to slow tumour growth and boost their immune system.
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cheryl petruk did not have the disease, but lived it intimately when her husband, eugene, was diagnosed in 1992 with et. in 2014, she formed the canadian mpn network , an advocacy group to support those living with the disease. then, in 2017, she founded the canadian mpn research foundation .
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