for instance, even with a continuous glucose monitor (cgm) and insulin pump, every time summers eats anything, she must calculate the grams of carbohydrates the food contains and adjust her insulin dosage accordingly. and that can be difficult.
say you’re served potato as a dinner guest. since you can’t weigh it, “you’re going to eyeball it, and the more you have to estimate things, the more chances you’ll foul it up,” summers explains, leading to blood sugar levels that are either too high or too low.
similar fluctuations can happen even when your math is perfect. factors like viral infections, trauma, surgery and stress can all cause blood sugar levels to skyrocket. toughened skin due to repeated jabs can interfere with insulin absorption — and therefore, blood sugar regulation — too.
last spring, for example, summers experienced a spate of unexplained high readings. “i tried everything — i was meeting with my diabetes nurse educator and my specialist more often trying to figure things out,” she recalls.
and that’s just one way high and low readings eat into someone’s schedule. a low blood sugar reading first thing in the morning — which isn’t uncommon — is a potentially dangerous event that causes extreme fatigue and brain fog. “you can’t function, and it’s hard to get out the door,” summers says. consuming fast-acting carbohydrates, such as juice or sugar, corrects the problem but takes 15 to 45 minutes to work.
bloodwork appointments and meetings with multiple medical professionals also consume enormous amounts of time and mental bandwidth. summers regularly sees a family physician, cardiologist, endocrinologist, foot specialist and ophthalmologist. she also missed a year of work after a 2020 surgery to amputate the toes of one foot because the wound stubbornly refused to heal.