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maya auchincloss, 25, has never been one to sit still. she was an active child who ran cross-country and danced.
as an adult, she discovered aerial circus performance. she immediately connected to this environment, with its blend of artistry, athleticism and discipline. the practice demands exceptional endurance and skill, and maya committed to a rigorous training schedule to develop the physical ability the work requires.
in the air, she moves with strength and confidence. but on the ground, for almost all of her life, maya has lived with pain.
“it feels like my foot’s been stuck in a bonfire,” she says. “like it’s burning and i just can’t pull it out.” she has spent years navigating surgeries, rare diagnoses and a health-care system that did not always listen.
but it was not only the physical pain that took a toll on maya — it was the uncertainty, the dismissal. and the invisible emotional weight of living in a body that would not cooperate.
it was not until she was referred to university health network’s (uhn) mental health in medicine clinic at toronto general hospital that maya felt, for the first time, that someone was listening to her whole story.
the long road to a diagnosis
maya’s ankle pain began when she was eight. “when you’re eight and in pain, you don’t really have the language to explain what is happening,” she says.
after months of persistent pain, a small lump was discovered in her ankle and diagnosed as a benign fibroma. at age 10, she underwent invasive surgery to remove the tumour, along with surrounding tissue and part of the bone, requiring a skin graft. she spent eight days in hospital, and recovery stretched on for months. she was in a cast, used a wheelchair and had limited mobility while undergoing physiotherapy.
for a time, the pain eased. but as a teenager, it returned, sharper and more disruptive.